My search for a diagnosis : Ehlers Danlos Syndrome
Hello SWAN, I just found out about your support group from Daybreak this morning. I could have done with this group 2 years ago as my 15 year old daughter had sublaxtions of the spine – scoliosis/...
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Hypermobility : Eiden’s story
His hypermobility as been classified as severe. His fingers bend back almost touching the back of his hands and all joints on his fingers move in all directions. His shoulder sublax regularly and he...
View ArticleWhat hypermobility means to my SWAN
When my daughter began to bruise easily I took her straight to our Paediatrician. He ran blood tests to check her platelets which came back fine. After taking a better history, I watched the Dr bending...
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Hypermobility : Keagan and Rio Stories
Both of my little swans have hypermobility but my 8year old (Keagan) has more problems with his wrists and fingers and needs to wear night splints and my 3year old(Rio) has more problems with his...
View ArticleWhat is hypermobility syndrome?
According to the Contact a Family medical directory “The term hypermobility means ‘more movement’ and describes the over flexibility of the joints. Hypermobility syndrome (HMS) is an inherited...
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JJ and Joint-Hypermobility
hello this is my swan JJ he is 5 years old , 2 years ago he was diagnosed with joint -hypermobility and he is hypermobilie in all his joints but most in his knees and fingers and thumbs, from the...
View ArticleHypermobility Syndrome – also known as Ehlers Danlos Syndrome, type 3
Just found this video on Youtube to help people understand Hypermobility Syndrome, otherwise known as Ehlers Danlos Syndrome, Type Three. [youtube...
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Brilliance at Brainwave
Now I know I left you all on a cliff hanger with how it all went at our Brainwave assessment, quite like the Eastender’s drums at the end of an episode. The reason for this was I had so much to say, I...
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Brilliance at Brainwave
Now I know I left you all on a cliff hanger with how it all went at our Brainwave assessment, quite like the Eastender’s drums at the end of an episode. The reason for this was I had so much to say, I...
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